Join Amie Darnell Specht and Shannon Hitchcock for a spirited book reading and signing as they celebrate the release of their new middle grade novel, Dancing in the Storm, and raise funds for FOP. Meet the authors and enjoy complimentary hors d'oeuvres and refreshments.
This special event is hosted by David & Shannon Hitchcock and Chuck & Tammara Darnell at Champion Hills Club House - 1 Hagen Drive Hendersonville, NC.
IMPORTANT: RSVP by February 13 to firstname.lastname@example.org.
Dancing in the Storm tells Amie Darnell Specht's story about her experience with FOP (fibrodysplasia ossificans progressiva), a rare genetic disease that turns muscle into bone and affects one in two million people worldwide.
Shannon Hitchcock, a CH member and award-winning author, has written several books for young adults. She collaborated with Amie to bring Amie's experience with FOP to life.
Malaprop's Bookstore will have books available for purchase at the event. A portion of the proceeds will go to IFOPA (International Fibrodysplasia Ossificans Progressiva Association), a nonprofit organization that provides hope to individuals with FOP and their families through education and support programs while funding research to find a cure for the rare genetic condition fibrodysplasia ossificans progressiva (FOP). Tax deductible donations to IFOPA will be gratefully accepted from those wishing to contribute. To learn more, visit IFOPA's website: https://www.ifopa.org.